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An Ongoing Search For Lipoma Treatment And Lipoma Cure

What is Lipoma Board? A forum and community offering information, alternative treatments, resources and support concerning lipomas, lipomatosis and other related conditions. Surgery shouldn't be the only option! Lipomas are fatty tumors under the skin. Read more >>

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 Lipoma & Sciatic Nerve
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PostPosted: 8/23/11 Tuesday, 1:28 am 
I have a Lipoma compressing on my Sciatic nerve deep in my left buttock. I am virtually paralyzed. I have been seeing specialists for 7 years and had 4 MRI scans to prove it. Finding a neurosurgeon to help me is near impossible. NSW health (Australia) have basically neglected me. I need help. Is there anyone in Australia that can chat to me or help me? My pain is a living nightmare. Thanks.



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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/23/11 Tuesday, 3:43 pm 
marcus06 wrote:
I have a Lipoma compressing on my Sciatic nerve deep in my left buttock. I am virtually paralyzed. I have been seeing specialists for 7 years and had 4 MRI scans to prove it. Finding a neurosurgeon to help me is near impossible. NSW health (Australia) have basically neglected me. I need help. Is there anyone in Australia that can chat to me or help me? My pain is a living nightmare. Thanks.


You may want to write to the authors of this article. They are in the US, but it may be helpful.

Here's article that mentions surgery on lipomas and sciatic nerve:

New York School of Medicine & Hospitals Center
Department of Neurosurgery
Peripheral Nerve Surgery


Lipomas Involving Nerves

...
Complications

*****There's a picture of an Intraoperative example of a large lipoma being removed from the sciatic nerve on the web page*****

Risks depend on lipoma size and location. If an important motor nerve runs through the lipoma, then removal may injure this nerve. Intraoperative nerve stimulation helps locate the nerve to ensure its preservation. Biopsies also have the risk of nerve injury.

http://www.med.nyu.edu/neurosurgery/pns ... pomas.html

Contact information can be found on the website.
If you want to phone them, you may consider using Skyper which is either free or no cost.

I have to work soon, I'll check back later for responses.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/24/11 Wednesday, 11:34 am 
Thanks Laura. That is a website I have seen but I'm surprised there are not more.
I need answers from the experts here in Australia who keep me in the dark. I am seeking answers now. I just found out today they are refusing me surgery. How hard can it be to remove a Lipoma away from the sciatic nerve?


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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/24/11 Wednesday, 10:02 pm 
marcus06 wrote:
Thanks Laura. That is a website I have seen but I'm surprised there are not more.
I need answers from the experts here in Australia who keep me in the dark. I am seeking answers now. I just found out today they are refusing me surgery. How hard can it be to remove a Lipoma away from the sciatic nerve?


Perhaps you could write the doctor in the above article, and ask if they know of someone in Australia.

It sounds like a sensitive operation because it is on the nerves.

I will try to research more, but I'm working right now.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/25/11 Thursday, 6:14 am 
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Joined:Tue Mar 29, 2011 8:01 am
Posts:1023
Location: Finland
Number of lipomas: 61-100
Laura, who cares about work when we have a mission to accomplish? :D

Sciatic nerve is a nasty place to have a lipoma. Unfortunally these little buggerers don't look at the place or timing... I had one particular lipoma in my right thigh which was located in the right side. Often, too often, I woke up in the middle of the night because I felt extreme burning feeling in my thigh were the lipoma was located. Somehow, when I slept on my right side, the lipoma pressed my nerve.

I decided to go and have it injected with Lipostabil around three years ago. The hurting ended to that point but the lipoma didn't really shrink. But I was glad at the time that it quit hurting after the injection. It might be that it went to necrosis or something because it didn't shring eventhough I had two more rounds of injections into it. In the end I decided to have it cut out because it was quite large. The doc said only that it looked like an ordinary lipoma and I didn't want to pay for the deeper study of it, so I never know what had happened to it after the injections.

It might be worth of thinking about the injection since your lipoma is located in a difficult place. It might stop the hurting and maybe even shrink the lipoma when it could possibly be easier to take out.

_________________
Matt has dozens of small nasty lipomas all over. Has tried many treatments including surgery and Lipostabil injections. Open to any bit of information. Matt's lipoma prevention supplements. Matt uses Emu oil for scars. Latest test with Triphala.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/28/11 Sunday, 2:48 am 
Thanks. Is lipostabil a medical procedure or cosmetic surgery?


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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/29/11 Monday, 6:27 am 
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Joined:Tue Mar 29, 2011 8:01 am
Posts:1023
Location: Finland
Number of lipomas: 61-100
Hi, i'm not sure what you are asking? Lipostabil is a substance made of Phosphatdylcholine and Deoxycholite. It is used to remove unwanted fat (remove fat emboli) so in that sense it can be considered cosmetic. It is injected via needle by an experienced medical doctor. It didn't remove any of my lipomas but made some of them smaller and I think some of them experienced necrosis (cell death) because they quit hurting. Before they were pressing my nerves and hurt from time to time. My insurance did not cover it :(

It's definitely not a miracle cure but it might help in your case since the lipoma is in an ackward position. Deoxycholine (ATC-101) injection alone would be better but I don't think that most doctors provide it atm...

_________________
Matt has dozens of small nasty lipomas all over. Has tried many treatments including surgery and Lipostabil injections. Open to any bit of information. Matt's lipoma prevention supplements. Matt uses Emu oil for scars. Latest test with Triphala.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/29/11 Monday, 11:11 am 
matt wrote:
Hi, i'm not sure what you are asking? Lipostabil is a substance made of Phosphatdylcholine and Deoxycholite. It is used to remove unwanted fat (remove fat emboli) so in that sense it can be considered cosmetic. It is injected via needle by an experienced medical doctor. It didn't remove any of my lipomas but made some of them smaller and I think some of them experienced necrosis (cell death) because they quit hurting. Before they were pressing my nerves and hurt from time to time. My insurance did not cover it :(

It's definitely not a miracle cure but it might help in your case since the lipoma is in an ackward position. Deoxycholine (ATC-101) injection alone would be better but I don't think that most doctors provide it atm...


Yes I just found out doctors do not give Lipostabil injections in Australia.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 10/12/11 Wednesday, 12:57 pm 
marcus06 wrote:
I have a Lipoma compressing on my Sciatic nerve deep in my left buttock. I am virtually paralyzed. I have been seeing specialists for 7 years and had 4 MRI scans to prove it. Finding a neurosurgeon to help me is near impossible. NSW health (Australia) have basically neglected me. I need help. Is there anyone in Australia that can chat to me or help me? My pain is a living nightmare. Thanks.


Marcus, see Klaus' post at this link, he does know a surgeon in Australia:

treatments-cures-f3/who-can-help-t78.html#p490


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 Re: Lipoma & Sciatic Nerve
PostPosted: 11/4/12 Sunday, 12:20 pm 
Hi my name is cindy I just came across your message about your lipoma mass I have one in the same location email me if u get this message so we can talk I've had surgery and it grew back my email is dmarine71@aol.com when emailing me please note in the subject area (painful tumor) so I know that it is you hope you come across my message I've been trying to find someone who has the same problem as me. Thank u


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 Re: Lipoma & Sciatic Nerve
PostPosted: 4/28/13 Sunday, 7:14 pm 
Cindy, are you still out there? I tried sending an email to dmarine71@aol.com and it bounced back.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 5/22/13 Wednesday, 2:16 am 
I had 22cm lipoma removed from deep right buttock one and a half years ago. Major nerves were disrupted. Have had nerve damage (numb foot, involuntary leg twitches) since. I feel certain it has grown back. I don't have confirmation of this, but numbness and nerve twitches are becoming more pronounced. Have appointment to return to surgeon in August. I should try to go sooner. I am depressed and scared.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 7/27/13 Saturday, 7:17 pm 
LK wrote:
I had 22cm lipoma removed from deep right buttock one and a half years ago. Major nerves were disrupted. Have had nerve damage (numb foot, involuntary leg twitches) since. I feel certain it has grown back. I don't have confirmation of this, but numbness and nerve twitches are becoming more pronounced. Have appointment to return to surgeon in August. I should try to go sooner. I am depressed and scared.


LT, I'm very sorry to hear you've had problems after surgery. I have a 9 cm lipoma beneath my right gleutus maximus (deep buttock).I saw a tumor surgeon today and have been considering surgery to have it removed. Is there a way I can contact you directly?


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 Re: Lipoma & Sciatic Nerve
PostPosted: 9/19/14 Friday, 3:07 am 
Hi. I am living the same nightmare in so California. Tomorrow I get my first contrast MRI after two years of being told I'm crazy. I had a lumbar fusion which was a second nightmare but it did nothing. So now I am living with 6 plates and 12 screws of titanium in my back for no reason. If they find something tomorrow and I come out of this alive and well , I will help you. You will have to come to America and see surgeons here. I promised God I would help someone if he releases me from this pain. If I can be helped. So can you and we will find a way. So sorry to here of your pain. D


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 Re: Lipoma & Sciatic Nerve
PostPosted: 9/24/14 Wednesday, 11:21 am 
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Joined:Tue May 10, 2011 8:30 am
Posts:455
Number of lipomas: 0
Hi Marcus

why you haven't contacted me? Of course, if I can help you, I will do it. Please write to me or call me 08-95242449. I made several experiences whilst a nerve on my legs were damaged and I had to suffer several years. Today I feel more comfortable.

Klaus


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