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In Search of Best Lipoma Treatment And Cure

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 Lipoma & Sciatic Nerve
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PostPosted: 8/23/11 Tuesday, 1:28 am 
I have a Lipoma compressing on my Sciatic nerve deep in my left buttock. I am virtually paralyzed. I have been seeing specialists for 7 years and had 4 MRI scans to prove it. Finding a neurosurgeon to help me is near impossible. NSW health (Australia) have basically neglected me. I need help. Is there anyone in Australia that can chat to me or help me? My pain is a living nightmare. Thanks.



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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/23/11 Tuesday, 3:43 pm 
marcus06 wrote:
I have a Lipoma compressing on my Sciatic nerve deep in my left buttock. I am virtually paralyzed. I have been seeing specialists for 7 years and had 4 MRI scans to prove it. Finding a neurosurgeon to help me is near impossible. NSW health (Australia) have basically neglected me. I need help. Is there anyone in Australia that can chat to me or help me? My pain is a living nightmare. Thanks.


You may want to write to the authors of this article. They are in the US, but it may be helpful.

Here's article that mentions surgery on lipomas and sciatic nerve:

New York School of Medicine & Hospitals Center
Department of Neurosurgery
Peripheral Nerve Surgery


Lipomas Involving Nerves

...
Complications

*****There's a picture of an Intraoperative example of a large lipoma being removed from the sciatic nerve on the web page*****

Risks depend on lipoma size and location. If an important motor nerve runs through the lipoma, then removal may injure this nerve. Intraoperative nerve stimulation helps locate the nerve to ensure its preservation. Biopsies also have the risk of nerve injury.

http://www.med.nyu.edu/neurosurgery/pns ... pomas.html

Contact information can be found on the website.
If you want to phone them, you may consider using Skyper which is either free or no cost.

I have to work soon, I'll check back later for responses.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/24/11 Wednesday, 11:34 am 
Thanks Laura. That is a website I have seen but I'm surprised there are not more.
I need answers from the experts here in Australia who keep me in the dark. I am seeking answers now. I just found out today they are refusing me surgery. How hard can it be to remove a Lipoma away from the sciatic nerve?


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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/24/11 Wednesday, 10:02 pm 
marcus06 wrote:
Thanks Laura. That is a website I have seen but I'm surprised there are not more.
I need answers from the experts here in Australia who keep me in the dark. I am seeking answers now. I just found out today they are refusing me surgery. How hard can it be to remove a Lipoma away from the sciatic nerve?


Perhaps you could write the doctor in the above article, and ask if they know of someone in Australia.

It sounds like a sensitive operation because it is on the nerves.

I will try to research more, but I'm working right now.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/25/11 Thursday, 6:14 am 
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Joined:Tue Mar 29, 2011 8:01 am
Posts:1123
Location: Finland
Number of lipomas: 61-100
Laura, who cares about work when we have a mission to accomplish? :D

Sciatic nerve is a nasty place to have a lipoma. Unfortunally these little buggerers don't look at the place or timing... I had one particular lipoma in my right thigh which was located in the right side. Often, too often, I woke up in the middle of the night because I felt extreme burning feeling in my thigh were the lipoma was located. Somehow, when I slept on my right side, the lipoma pressed my nerve.

I decided to go and have it injected with Lipostabil around three years ago. The hurting ended to that point but the lipoma didn't really shrink. But I was glad at the time that it quit hurting after the injection. It might be that it went to necrosis or something because it didn't shring eventhough I had two more rounds of injections into it. In the end I decided to have it cut out because it was quite large. The doc said only that it looked like an ordinary lipoma and I didn't want to pay for the deeper study of it, so I never know what had happened to it after the injections.

It might be worth of thinking about the injection since your lipoma is located in a difficult place. It might stop the hurting and maybe even shrink the lipoma when it could possibly be easier to take out.

_________________
Hi I'm Matt - the creator and owner of this site. I have dozens of small nasty lipomas all over. I've tried many treatments including surgery and Lipostabil injections. See my lipoma prevention supplement recommendations and please consider donating a small amount via PayPal (click the Donate button) to keep this site up and running. Thx!


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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/28/11 Sunday, 2:48 am 
Thanks. Is lipostabil a medical procedure or cosmetic surgery?


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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/29/11 Monday, 6:27 am 
Lipoma Guru
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Joined:Tue Mar 29, 2011 8:01 am
Posts:1123
Location: Finland
Number of lipomas: 61-100
Hi, i'm not sure what you are asking? Lipostabil is a substance made of Phosphatdylcholine and Deoxycholite. It is used to remove unwanted fat (remove fat emboli) so in that sense it can be considered cosmetic. It is injected via needle by an experienced medical doctor. It didn't remove any of my lipomas but made some of them smaller and I think some of them experienced necrosis (cell death) because they quit hurting. Before they were pressing my nerves and hurt from time to time. My insurance did not cover it :(

It's definitely not a miracle cure but it might help in your case since the lipoma is in an ackward position. Deoxycholine (ATC-101) injection alone would be better but I don't think that most doctors provide it atm...

_________________
Hi I'm Matt - the creator and owner of this site. I have dozens of small nasty lipomas all over. I've tried many treatments including surgery and Lipostabil injections. See my lipoma prevention supplement recommendations and please consider donating a small amount via PayPal (click the Donate button) to keep this site up and running. Thx!


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 Re: Lipoma & Sciatic Nerve
PostPosted: 8/29/11 Monday, 11:11 am 
matt wrote:
Hi, i'm not sure what you are asking? Lipostabil is a substance made of Phosphatdylcholine and Deoxycholite. It is used to remove unwanted fat (remove fat emboli) so in that sense it can be considered cosmetic. It is injected via needle by an experienced medical doctor. It didn't remove any of my lipomas but made some of them smaller and I think some of them experienced necrosis (cell death) because they quit hurting. Before they were pressing my nerves and hurt from time to time. My insurance did not cover it :(

It's definitely not a miracle cure but it might help in your case since the lipoma is in an ackward position. Deoxycholine (ATC-101) injection alone would be better but I don't think that most doctors provide it atm...


Yes I just found out doctors do not give Lipostabil injections in Australia.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 10/12/11 Wednesday, 12:57 pm 
marcus06 wrote:
I have a Lipoma compressing on my Sciatic nerve deep in my left buttock. I am virtually paralyzed. I have been seeing specialists for 7 years and had 4 MRI scans to prove it. Finding a neurosurgeon to help me is near impossible. NSW health (Australia) have basically neglected me. I need help. Is there anyone in Australia that can chat to me or help me? My pain is a living nightmare. Thanks.


Marcus, see Klaus' post at this link, he does know a surgeon in Australia:

treatments-cures-f3/who-can-help-t78.html#p490


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 Re: Lipoma & Sciatic Nerve
PostPosted: 11/4/12 Sunday, 12:20 pm 
Hi my name is cindy I just came across your message about your lipoma mass I have one in the same location email me if u get this message so we can talk I've had surgery and it grew back my email is dmarine71@aol.com when emailing me please note in the subject area (painful tumor) so I know that it is you hope you come across my message I've been trying to find someone who has the same problem as me. Thank u


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 Re: Lipoma & Sciatic Nerve
PostPosted: 4/28/13 Sunday, 7:14 pm 
Cindy, are you still out there? I tried sending an email to dmarine71@aol.com and it bounced back.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 5/22/13 Wednesday, 2:16 am 
I had 22cm lipoma removed from deep right buttock one and a half years ago. Major nerves were disrupted. Have had nerve damage (numb foot, involuntary leg twitches) since. I feel certain it has grown back. I don't have confirmation of this, but numbness and nerve twitches are becoming more pronounced. Have appointment to return to surgeon in August. I should try to go sooner. I am depressed and scared.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 7/27/13 Saturday, 7:17 pm 
LK wrote:
I had 22cm lipoma removed from deep right buttock one and a half years ago. Major nerves were disrupted. Have had nerve damage (numb foot, involuntary leg twitches) since. I feel certain it has grown back. I don't have confirmation of this, but numbness and nerve twitches are becoming more pronounced. Have appointment to return to surgeon in August. I should try to go sooner. I am depressed and scared.


LT, I'm very sorry to hear you've had problems after surgery. I have a 9 cm lipoma beneath my right gleutus maximus (deep buttock).I saw a tumor surgeon today and have been considering surgery to have it removed. Is there a way I can contact you directly?


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 Re: Lipoma & Sciatic Nerve
PostPosted: 9/19/14 Friday, 3:07 am 
Hi. I am living the same nightmare in so California. Tomorrow I get my first contrast MRI after two years of being told I'm crazy. I had a lumbar fusion which was a second nightmare but it did nothing. So now I am living with 6 plates and 12 screws of titanium in my back for no reason. If they find something tomorrow and I come out of this alive and well , I will help you. You will have to come to America and see surgeons here. I promised God I would help someone if he releases me from this pain. If I can be helped. So can you and we will find a way. So sorry to here of your pain. D


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 Re: Lipoma & Sciatic Nerve
PostPosted: 1/5/15 Monday, 7:16 pm 
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Joined:Tue May 10, 2011 8:30 am
Posts:498
Number of lipomas: 0
Hi Marcus

why you haven't contacted me? Of course, if I can help you, I will do it. Please write to me or call me 08-95242449. I made several experiences whilst a nerve on my legs were damaged and I had to suffer several years. Today I feel more comfortable.

Klaus


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 Re: Lipoma & Sciatic Nerve
PostPosted: 2/23/15 Monday, 8:23 am 
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Number of lipomas: 0
nice,,, It makes a informative thread...


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 Re: Lipoma & Sciatic Nerve
PostPosted: 6/5/15 Friday, 1:32 am 
LK wrote:
I had 22cm lipoma removed from deep right buttock one and a half years ago. Major nerves were disrupted. Have had nerve damage (numb foot, involuntary leg twitches) since. I feel certain it has grown back. I don't have confirmation of this, but numbness and nerve twitches are becoming more pronounced. Have appointment to return to surgeon in August. I should try to go sooner. I am depressed and scared.



LK Can you give me more information about your surgery I also have a 22cm Lipoma in my Right buttock/lower back area and going to have surgery very soon. Im nervous and would love someone to talk to who has gone through this also. Thanks


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 Re: Lipoma & Sciatic Nerve
PostPosted: 9/21/15 Monday, 5:49 pm 
About a month ago I was standing in the grocery store and my left leg went numb from my toes to my rear. It was an odd feeling, not like when your leg falls asleep and you can't really walk, but just a numbness. It went away after a minute or so but it scared me. It happened twice that week and now a month later it happens anytime I am on my feet for a long time. I can pinpoint where it starts, a large lipoma on my lower back, to the left of my spine and just above the buttocks. It has been there for years (one of the first I can remember) and it steadily grows but it has never caused me discomfort until recently. It's probably a good 10cm in length. On that note, I have a few more large ones right around my lower spine and I get blinding pain when I try to bend over and pick something up or try to stand up straight. Sometimes getting off the couch is a chore which sucks because I'm only 33 and pretty active. I still play flag football but in order to do so I'm taking 4 extra strength advil before the game and 2 at half time.

I'll make an appointment with my GP and see what he can do for that area. Hopefully OHIP will cover the surgery since it is painful and now I can't workout anymore. I guess we'll see anyway.

I've already seen a plastic surgeon once and had 17 removed from my left arm to the tune of about $1,700. Needless to say, it is an expensive endeavor to have these removed and unfortunately I have upwards of 100 all over me. Probably more actually but I haven't bothered to count in a while.


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 Re: Lipoma & Sciatic Nerve
PostPosted: 11/21/15 Saturday, 3:35 am 
Well, I've seen two doctors now. The first one was a new GP and he agreed it was my lipoma that is pressing on a nerve. He didn't want to do anything until my leg was numb almost constantly and then he would book an MRI for me.

My current GP doesn't think it is the lipoma, he believes I have a slipped disc which is pinching a nerve. I've got an appointment for an MRI in November, hopefully that will clear everything up. He perscribed me Vimovo which I take twice a day and it is actually helping a lot with the pain in my back and the leg hasn't gone numb since I started taking it a few days ago.

Never thought I would say this, but I can't wait for November to get here.


Last bumped by Anonymous on Saturday.


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