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An Ongoing Search For Lipoma Treatment And Lipoma Cure

What is Lipoma Board? A forum and community offering information, alternative treatments, resources and support concerning lipomas, lipomatosis and other related conditions. Surgery shouldn't be the only option! Lipomas are fatty tumors under the skin. Read more >>

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News News of Dercum's Disease (Adiposis Dolorosa)

Site map of Dercum's Disease (Adiposis Dolorosa) » Forum : Dercum's Disease (Adiposis Dolorosa)

The section is for the disussion of Dercum's Disease (Adiposis Dolorosa), a disease in the lipoma family. It is characterized by painful, irregular fatty swellings or lipomas and is frequently misdiagnosed.

Article in Columbia Tribute

Quote:

Researchers are studying the use of interferon alfa-2b as a potential treatment, according to the National Organization for Rare Disorders, or NORD. Alternative treatments include acupuncture, hypnosis, biofeedback and cognitive behavior therapy, according to NORD.

Herbst, an endocrinologist, has produced an online documentary about the disease in which she explains the mechanics behind Dercum’s. In a healthy body, small amounts of fluid containing toxins continually leak from blood vessels and are easily flushed out ...
Read more : Article in Columbia Tribute | Views : 406 | Replies : 1


Dercums Disease foundation uk

Hi Everyone
My name is Gena and I have joined this group to show my support to all Dercum's sufferers on here and all over the world. I'm the secretary of Dercum's Disease and Rare Disease Foundation UK which is a newly registered UK charity. I have not got Dercum's myself but my mother in-law has and my husband, sister in-law and bother in-law have all now got lumps and pain, and show many other ...
Read more : Dercums Disease foundation uk | Views : 658 | Replies : 0


Is it true that you can't remove lipomas in DD?

I saw the docu about the army soldier who got DD.
In this docu they said that when you have DD and try to remove lipomas
they all come back, is this always the case?
Read more : Is it true that you can't remove lipomas in DD? | Views : 1605 | Replies : 3


Radio Interview Video With Dercum's Patient

I found this 7 minute video through Dr. Karen Herbst site and I found it interesting.

They did a fund raising a couple of years ago which is why they were on the radio.

Dercum's patient Mindy Willert talks about her symptoms (tumors, lymphadema where her body fills up with fluids, foggy brain) and the possible causes.

She mentions some new type of treatment CVAC sessions which is not yet proved by the FDA but ...
Read more : Radio Interview Video With Dercum's Patient | Views : 1403 | Replies : 3


Supplements and DD's with 300+ tumours

There is a hiddent danger I must share with you. I'v spent quite a few years learning and researching. Please consider the following:

1) Supplements may be bad for you. Take a look at the list, if it contains Zinc you should speak to a doctor before you take that. These tumours have zinc receptors, DD's MLS', or just about any benign tumours have Zinc recptors ...
2) If you have so many of these ...
Read more : Supplements and DD's with 300+ tumours | Views : 1499 | Replies : 4


Could I possibly have dercum's disease?

About two years ago I noticed a lump on my right side near my hip. I didn't really hurt and never caused me much worry, because it didn't really grow. About a year later I noticed a similar lump, just a tad larger, on my left side (a little higher than the other). I was told by a doctor they were "fatty tumors" and not to worry about them. Fast forward to now. I have ...
Read more : Could I possibly have dercum's disease? | Views : 2098 | Replies : 6


any relation?

Hello, I am a 37 yr old female, mid-menopause, due to surgery for endometriosis & adhesions. I have had chronic kidney stones my whole life, they were diagnosed, idiopathic. I was diagnosed with degenerative disc disease 8 yr s ago & pelvic adhesion disease 4 yrs ago. I have had 6 lipomas removd, have dozens more left that are very painful & my doctor believes I may have Dercum disease. Is there anything known of ...
Read more : any relation? | Views : 1153 | Replies : 2




Is Dercum's The Common Denominator For Other Lipoma Diseases

There's a Norwegian study done in 1987 by Dr. Helge Stormorken entitled

Liposis dolorosa. Its own entity or the common denominator for other lipoma-based diseases?

Liposis dolorosa is a synonym for Adiposis Dolorosa (the scientific name for Dercum's disease).

Unfortunally there wasn't even an abstract to be found for this study. I checked whether I could get in contact with Dr. Stormorken but I believe his now almost 90 years old and I'm not sure ...
Read more : Is Dercum's The Common Denominator For Other Lipoma Diseases | Views : 2582 | Replies : 2


What Is Dercum's Disease

Found this article from the long gone site dercumshope.org:

Quote:
Article by Denise Loving, MS

Dercum’s disease is a progressive disorder that causes the growth of painful adipose (fat) tissue. The painful fat can be in distinct lumps and nodules, or it can be more diffuse and harder to tell from ordinary fat. A few other names used for Dercum’s disease are adiposis dolorosa, adiposa dolorosa, lipomatosis dolorosa, neurolipomatosis, or Dercum’s syndrome.

Diagnosis

It can be ...
Read more : What Is Dercum's Disease | Views : 9243 | Replies : 3


 

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