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Lipoma Board

In Search of Best Lipoma Treatment And Cure

What is Lipoma Board? A forum and community offering information, alternative treatments, resources and support concerning lipomas, lipomatosis and other related conditions. Surgery shouldn't be the only option! Lipomas are fatty tumors under the skin. Read more >>

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It is currently Thu Aug 24, 2017 12:03 am

News News of Familial Multiple Lipomatosis

Site map of Familial Multiple Lipomatosis » Forum : Familial Multiple Lipomatosis

Familial multiple lipomatosis is a rare disease. With this condition you get multiple lipomas (dozens or hundreds) all over your body. Lipomas are usually encapsulated.

Loss of fat in face + other scary side effects? Src:Nih.gov

My dermatologist pointed me to this government site, https://rarediseases.info.nih.gov/disea ... ipomatosis, that lists many scary symptoms in addition to the lipomas, that are supposed to occur frequently -- Lipodystrophy (loss of fat in face), Functional intestinal obstruction -- and occasionally -- Abnormality of the tricuspid valve (heart issue), Accelerated skeletal maturation, Arachnoid cyst (brain tumor), etc. On other FML sites I'm not finding such scary correlations reported. Has anybody ...
Read more : Loss of fat in face + other scary side effects? Src:Nih.gov | Views : 1808 | Replies : 1


I believe I may have FML

Hi everyone!

I belonged to his board before but decided to rejoin as I enjoyed reading others' experiences with lipomas and sometimes I get frustrated with mine. I'm 32 yo male, 175 lbs, and I'd like some insight and opinions about mine so please feel free to reply with any info you think may be helpful. I discovered my first one when I was 12 on my upper, inner left thigh, which to this day ...
Read more : I believe I may have FML | Views : 1526 | Replies : 1


Found 100s lipomas suddenly appearing 2 days ago

Hi everyone,

I'm male, 36, and I just found that I suddenly have 100s lipomas on my inner thighs 2 days ago on both of my legs. Three or 4 days ago nothing was there -- I'm pretty sure of this because I was massaging my thigh area during a bath and felt nothing before.

They're bumpy and fairly small (about 5mm in size) but there are a lot of them that seems to be ...
Read more : Found 100s lipomas suddenly appearing 2 days ago | Views : 3993 | Replies : 13


Should i have kids?

Hi,

I have FML, which is a hereditary syndrome (My dad has ~4 of them, i have >40). I am in my mid 30's and thinking of getting married. but i started thinking seriously about the morality of having kids while i know they will be at a high risk to develop the syndrome.

What do you guys think about this? will you take the risk and build a family, or enjoy the remaining of ...
Read more : Should i have kids? | Views : 2426 | Replies : 5


Update child with multiple lipomas

So I previously posted about my son that has multiple lipomas. We have been seeing a pediatric derm at the best hospital in Wisconsin. They are still stumped as to what is going on. Every visit they have been saying"well, only a few new ones" and we have been going every 3 months! They are now saying they are not convinced they are lipomas because they do not look like classic lipomas, whatever that means! ...
Read more : Update child with multiple lipomas | Views : 1764 | Replies : 0


interesting treatment using curcumin

http://www.dailymail.co.uk/health/artic ... ancer.html

eating it does not work though, thought this article might be of some use as I myself have tried eating tumeric ( no real affect though).

Possibly this treatment could be used on Lipoma???
Read more : interesting treatment using curcumin | Views : 2140 | Replies : 1


Using TENS on lipoma?

I ordered this for my shoulder but was wondering if anyone tried pro-longed experiment with using electrical stimulation on lipomas to see if it would shrink? Some people experience pain w/lipoma against the nerve, is anyone is using TENS for their lipoma pain?

http://www.amazon.com/gp/product/B007 ... 8&psc=1

http://www.spineuniverse.com/treatments ... ryotherapy
Read more : Using TENS on lipoma? | Views : 2009 | Replies : 0


Will workouts make FML worse like in Dercums?

I'm in the process of trying to get a diagnosis so I am unsure if I have FML or Dercums.

I have at least 100 lipomas, most of them appearing in the last two years during pregnancy and after.

I have much weight to loose and have been working out at least 3 days a week but I aim for 5. I have noticed more lipomas since starting and more pain plus it takes me ...
Read more : Will workouts make FML worse like in Dercums? | Views : 4023 | Replies : 2


No Idea

Just had my yearly physical for work and as soon as I took my shirt off the Dr. was shocked at the scars on my stomach and back. I tried to explain what the lipomas were but was frustrated on her reaction. She honestly had to look up lipomatosis and started to ask me questions about it. Very disappointing when you see this reaction from your local doctors. I told her what I have learned ...
Read more : No Idea | Views : 3526 | Replies : 2


IVF with PGD - worth considering or not?

I wasn't sure if there was an existing thread suitable for my ramblings, so I thought I would rather start a new one.

I've been thinking about the possibility of having IVF treatments with preimplantation genetic diagnosis so that I wouldn't have to worry about my future children having this condition and their lives and self esteem possibly being affected. But then, I talked to my sister about it and she said I was nuts. ...
Read more : IVF with PGD - worth considering or not? | Views : 3853 | Replies : 7


 

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