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any relation?

The section is for the disussion of Dercum's Disease (Adiposis Dolorosa), a disease in the lipoma family. It is characterized by painful, irregular fatty swellings or lipomas and is frequently misdiagnosed.

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april

any relation?

Post by april » Sat Sep 08, 2012 3:13 am

Hello, I am a 37 yr old female, mid-menopause, due to surgery for endometriosis & adhesions. I have had chronic kidney stones my whole life, they were diagnosed, idiopathic. I was diagnosed with degenerative disc disease 8 yr s ago & pelvic adhesion disease 4 yrs ago. I have had 6 lipomas removd, have dozens more left that are very painful & my doctor believes I may have Dercum disease. Is there anything known of these diseases & illnesses being related to each other? What would be the best resource in your opinion for me to go to for researching any relations to all of these issues? Thank you for your time.
fb888

Re: any relation?

Post by fb888 » Tue Sep 11, 2012 3:10 am

Sorry I don't have answer to your question but which part(s) of body did you have the 6 lipomas removed and where are the rest at?
Did your insurance cover it?
Do you plan on having more removed within the next year?
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matt
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Re: any relation?

Post by matt » Tue Sep 11, 2012 7:36 am

Hi april!

I'm sorry I can't answer to your questions. If you live in the US you might get in touch with Karen Herbst. She is likely the most experienced in the field of the Dercum's. Her website address is http://www.lipomadoc.org
Hi I'm Matt - the creator and owner of this site. I have dozens of small nasty lipomas all over. I've tried many treatments including surgery and Lipostabil injections. See my lipoma prevention supplement recommendations and please consider donating a small amount via PayPal (click the Donate button) to keep this site up and running. Thx!
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