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Supplements and DD's with 300+ tumours

The section is for the disussion of Dercum's Disease (Adiposis Dolorosa), a disease in the lipoma family. It is characterized by painful, irregular fatty swellings or lipomas and is frequently misdiagnosed.

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MarkX3

Supplements and DD's with 300+ tumours

Post by MarkX3 » Fri Feb 01, 2013 12:22 am

There is a hiddent danger I must share with you. I'v spent quite a few years learning and researching. Please consider the following:

1) Supplements may be bad for you. Take a look at the list, if it contains Zinc you should speak to a doctor before you take that. These tumours have zinc receptors, DD's MLS', or just about any benign tumours have Zinc recptors ...
2) If you have so many of these and try to maintain a normal life, it is best to focus your mind. Learn all about mindfull meditation. It will help in managing pain, fatigue and getting out of bed. It helps me. it is no silver bullet tho.
3) Before you get out of bed, it is extremly helpful to think about something nice when you get up. I.e. I think about a nice warm shower... lol ... not that kind... it helps to look forward to good things.
4) Depending on your severity you may wish to cut out all supplements:
If your condition is not as bad, do add Carnitine to your supplements, read about it to find out why, Carnitine + NAC + Cq10 + Large amounts of Garlic can help you(Do NOT buy that expensive garlic, this garlic must be in a gel form). If gotta do some research.
If your condition is bad, then you have to find out the following two:
a) have the tumours begun to invade organs. If they have like in my case, days maybe numbered.
b) parasites. Normal parasite testing will not do, normal cleansing parasite kits you can buy, will not do. Seek a real proffesional, not a homeopathic doctor... once I made a scam artist homeopathic doctor cry as the things he prescribed nearly killed me, and made my condition worse. Their MO is start with the liver etc... waste of your money.

Finally, if your condition is bad, I wouldn't mind getting in touch with you, just to share and or compare notes, not on a public BBS.


Please do not be fooled by other medicines, such as Chinese medicine, which is quite good to treat the onset of DD. There are two research papers. One which describes the DD and treatment and showcases three people. Another one which reviews the methods of the first one and comes to the conclusion that its only effective in the begning of the DD. Still something noteworthy.

Be well.

Markx3
breezy
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Re: Supplements and DD's with 300+ tumours

Post by breezy » Fri Feb 01, 2013 1:47 pm

I have become very interested in all of these conditions. I believe I suffer from FML. Could you please explain to me what your condition is like and if you have always had DD or started out with just lipomas. I just talked to a doctor the other night and was told to do yoga to clear the head and it might help with the lipomas. Yeah maybe the mind but not the body. Thanks
Markx

Re: Supplements and DD's with 300+ tumours

Post by Markx » Fri Feb 01, 2013 11:45 pm

On a good day, like today, I can write a reply, on a bad day, all I do is watch TV while listening to a book, or some other crazy stuff to take my mind off the pain. I find that reading complex anything helps with the distraction. Mindfull meditation helps when moving about or driving. You gotta find something that works for you. I also find that Fish oil + ALA help me move about.

Fatigue is a nightmare to deal with. Again I find meditation along with some other medications help, there is no cure to this. Sometimes I will just sit still and focus on that and let the onset pass. Sometimes it works, sometimes it does not.

Swelling can be a problem, but since I started on triple filetered fish oil and alpha lipic acid, most of the joints pain has been reduced to a bareable level, and swelling is minimal.

You have to understand, this is not DD, there is an underlaying disease at work here. Type ATP and tumour growth into google...

I am fully convinced the lipomas, etc are a direct result of a mitrocondrial deases. And, this is where DD comes from. ---- disclaimer, I am not a medical doctor, but I do play one in real life.... lol ---- jk////
BumpyIowan
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Re: Supplements and DD's with 300+ tumours

Post by BumpyIowan » Thu Mar 07, 2013 9:09 am

Would love to talk with you. I think I may have Detcums and am confused and frustrated. No one in the medical community seem to have any advice other than offering to cut them out, then in the next breath telling me they will most likely come back. I was diagnosed with the blood clotting disorder Leiden Factor V a few years ago, can't help but believe there is a correlation between this chromosomal abnormality and my ever increasing lumps!
MarkX3
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Re: Supplements and DD's with 300+ tumours

Post by MarkX3 » Sat Mar 09, 2013 7:11 pm

Get a correct diagnosis, depends on where you live, but do a google search for Doctor Lipoma +Your Province or State, and so forth. And yes, the complex mechanism of lipoma growth is not understood. I have not found a comprehensive study, as there are none. There are however tons of speculations. From reading others posts you will notice that in a lot of cases people do report other conditions. I have no clue what Leiden Factor V is, but if you seek an expert who specializes just in that, you will find correct diagnosis and possible confirmation of correlation. Find out what genes are related, and start from there...

It can be frustrating so hang in there.
---()---()-() I'm on a path to kill off these ***&&^ Lipomas,
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