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Familial multiple lipomatosis is a rare disease. With this condition you get multiple lipomas (dozens or hundreds) all over your body. Lipomas are usually encapsulated.

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matt
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Resources

Post by matt » Mon Feb 28, 2011 12:29 pm

Familial Multiple Lipomatosis (FML) is a hereditary condition with a proposed autosomal-dominant inheritance in which groups of fat cells in the subcutaneous tissues begin to grow and produce multiple fatty lumps underneath the skin. These fatty lumps are benign fatty tumors or lipomas.

FML was first described in 1857 by Murchison and is a rare disorder that tends to run in families. FML affects both men and women.

Symptoms

The main symptoms of FML are the lipomas that appear on the arms, thighs, abdomen, and neck of the patient. (The lipomas can also occur on the face and buttocks and lower legs as well.) The head and shoulders are usually spared. The presentation of this disease is rather variable. These lipomas occur in subcutaneous fat, can vary widely in size, can be surrounded by connective tissue or not, and may or may not be attached to the skin and other nearby structures including muscle. They are rubbery, moveable, and ovoid to round in shape. The lipomas in FML are not normally painful, unless they are located in a regularly irritated area. They can appear singularly or may be in large clusters. The lipomas typically appear during or soon after adolescence, although FML has also been reported to appear at the third decade. Usually a family history of multiple lipomas does exist.

Source: http://fatdisorders.org/what-are-fat-di ... ipomatosis

More:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1824156/
http://www.lipomadoc.org/fml.html
http://www.medonc.com/lipomas.htm
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matt
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Re: Resources

Post by matt » Thu Apr 21, 2011 6:39 am

Good description of FML with some pics: http://dermatology.cdlib.org/131/cases/ ... 805_5.html
Hi I'm Matt - the creator and owner of this site. I have dozens of small nasty lipomas all over. I've tried many treatments including surgery and Lipostabil injections. See my lipoma prevention supplement recommendations and please consider donating a small amount via PayPal (click the Donate button) to keep this site up and running. Thx!
Ellimac

Re: Resources

Post by Ellimac » Wed Jun 15, 2011 6:06 pm

Hi,
Would anyone be able to comment on whether or not , since it is listed in the ICD, removal of Familial Multiple Lipomas is covered by insurance. I understand it is up to the individual carrier, but this is a general inquiry.

Thanks very much
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matt
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Re: Resources

Post by matt » Mon Aug 08, 2011 7:30 pm

Hi Ellimac,

unfortunally there is now overall answer to your question. It depends on many things like the country you live in, insurance company and whether the lipomas hurt or not. Which kind of method was used to remove the lipomas and does the doctor/insurance company think that the removal is merely a cosmetic procedure.

I think most insurances will cover the removal of lipomas by surgery if you complain that they cause you physical discomfort.

All the best! ;)
Hi I'm Matt - the creator and owner of this site. I have dozens of small nasty lipomas all over. I've tried many treatments including surgery and Lipostabil injections. See my lipoma prevention supplement recommendations and please consider donating a small amount via PayPal (click the Donate button) to keep this site up and running. Thx!
aravind reddy
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Re: Resources

Post by aravind reddy » Thu Sep 22, 2011 10:10 am

hi..this feels so annoying..y we should suffer
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matt
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Number of lipomas: 61-100
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Re: Resources

Post by matt » Fri Sep 23, 2011 5:04 pm

Hi there, I have been asking the same thing over and over again. For heavens sake, it's 2011 not the Stone Age! And the only treatment we have for lipomas is invasive surgery. None of the non-invasive treatments have yet had a breakthrough. Unfortunally, but I'm pretty sure we are getting there soon. I see many members in this forum willing to go the extra mile. Many are currently testing and reporting it here. We are on a roll. :)

Just hang in there.
Hi I'm Matt - the creator and owner of this site. I have dozens of small nasty lipomas all over. I've tried many treatments including surgery and Lipostabil injections. See my lipoma prevention supplement recommendations and please consider donating a small amount via PayPal (click the Donate button) to keep this site up and running. Thx!
johnsonbeer0099
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Re: Resources

Post by johnsonbeer0099 » Sat Dec 03, 2011 3:23 pm

Thanks for information about <fml>.it,s vary importent :)
khaled
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